Tag Archives: epilepsy

Growing Up with Hippie Parents in a Cloud of Smoke

A Child’s Perspective on Hippie Parents and Drug Culture in the Early 70s by Solitaire Miles

Why I’m Sharing This Story Now:

As marijuana legalization sweeps across America I feel compelled to share my story. What I experienced in the early 1970s as a child of hippie parents might seem mild compared to what some children face today because the marijuana of my childhood was far less potent than the high-THC strains now grown, sold, and distributed legally. Emergency rooms regularly treat children for marijuana overdose and severe vomiting episodes – a situation that should alarm us all. I’m writing this because I believe many parents remain undereducated about the real dangers marijuana poses to growing children, both physically and psychologically.

My Early Childhood

I was born in 1967 to hippie parents – who else would name their child Solitaire? For the first few years of my life, I stayed with my grandparents, thank goodness, because my parents were still in their teens, just out of high school, and they were living wildly and were both experimenting with a lot of drugs. I had a guardian angel though, my grandmother Connie was very protective of me, and I lived at her house and was raised there from birth. She taught me many things, how to eat, how to walk, she potty trained me, she taught me to speak… and all of the things that a newborn baby growing up to be a toddler need to learn. My loving grandmother adored me and raised me as if I were her own daughter.

The Change 1971

Sadly, when I was about 4 years old, my grandmother got sick and had to go into the hospital to be treated for epilepsy, so I had to live with my mother and father, which was not fun at all. They weren’t big time criminals, they weren’t evil people, but they were very addicted to drugs and they liked to party a lot. Every night there was alcohol and drugs in the house and lots of their hippie friends listening to music, getting high until the early hours of the morning. It was a very scary and difficult environment for me to be in after having been raised with my grandmother in her quiet Catholic household.

Life With My Parents

My father grew his own marijuana out in the woods somewhere and he sold it to his friends while he was going to college so he wouldn’t need a day a job while going to school. Apparently he grew a lot of it because there was always marijuana in the house. In our living room there was a big wooden box that held all of the marijuana in the baggies and the joint rolling papers. My mother showed me this when I moved in, and she not only showed me how to break up the leaves into baggies but also trained me how to roll joints so that there would always be an availability for customers when they came to our house.

If my parents were busy or weren’t home and I was alone (if you can imagine leaving a four-year-old home alone with a large cache of drugs), I could go and retrieve the drugs and give them to whoever came to the door for them. Often times in the afternoon or the early evening, friends would come over and I would be rolling the joints for them and passing them out to people as I was instructed to do. Everyone thought that it was so quaint and what a little soldier I was. The rooms would fill up with marijuana smoke and I would be encouraged to smoke the marijuana myself because they said it was natural and it was good for kids to keep them calm.

My Coping Methods

The marijuana made me really sick – it made me feel like I wanted to puke and it gave me terrible headaches. After I did my job of rolling the joints and passing out the cigarettes or the baggies to whoever showed up, I would go and hide in my room at about 6:00 at night after dinner. I would stuff a towel or a blanket under the bottom of my door so that their smoke wouldn’t come in, and then I would crack my bedroom window even if it was hard winter so that there would be fresh air in my room and I wouldn’t get one of those nauseating headaches. I would try to read a book until I fell asleep for the rest of the night. It would be hard sometimes to stay asleep because especially on the weekends they would have loud parties with lots of music and 10 or 12 people would show up and they’d hoot and holler and party and do their drugs until dawn.

The Long-Term Impact on My Adult Life

As an adult working in the entertainment business, it has been a challenge for me to try to remain working around clean and sober people. I am clean and sober and I do not drink or use drugs and alcohol, and I’ve never smoked marijuana. There was a time in my early to mid-20s where I did use alcohol, but I stopped that after I developed epilepsy, which is genetic in my family. Alcohol and marijuana both make my seizures worse. A lot of people think that marijuana can make seizures better, but one in four epilepsy patients are actually made worse by it. If you don’t believe me go to the national institute of health and research it, there is a drug called Epidolex created for kids who have Dravet syndrome, a very specific type of epilepsy and marijuana derivatives seem to help these kids but for as many as it helps it makes others worse and the drug has a 25% failure rate.

Working in the entertainment business has been very difficult since legalization, and I find it challenging to perform and work when people use marijuana on stage or in the clubs or restaurants where I would be. I’ve had to stop performing in person at many venues and I only perform in places that. I know for sure there won’t be any drug smoke in the venue and I prefer working in outdoor venues and concerts during the summer.

Secondhand Marijuana Smoke Affects My Health

A lot of people don’t like me or will refuse to work with me because they think I’m a prude or a snob, but if they understood what I went through as a child and that marijuana does negatively affect me, causing me to have migraines and seizures, maybe they would have some sympathy…. although many of them do not, even when I try to explain the simple fact that their marijuana smoke on stage is enough to trigger a seizure – and I would never want to have a seizure on stage in front of an audience. So now I am mostly a recording artist and have to be satisfied with that.

I’m not going to tell anybody what to do with their bodies, but I wish that they could be more respectful with their secondhand smoke because it does affect other people’s bodies and it does affect the health of their children, which are our greatest resource, and if America is going to continue to thrive, we need to raise our children with love, keeping them healthy, and teaching them to respect themselves and not become addicts. I feel sorry for any child that has to live through now what I lived through in 1971 because I know that the quality and the intensity of the drugs are so much stronger than my dad’s homegrown ever was.

Editor’s Note:  Here are some other articles on secondhand smoke:

Secondhand Smoke from Marijuana Worse than Cigarettes

Breathe Cannabis Free Oregon

Right to Know if CBD for Epilepsy Doesn’t Always Work

Don’t  Mislead About CBD for Epilepsy

(First of 2 articles on deceptive practices of the marijuana lobby/industry) Doesn’t the public have a right to know that children a so called”life-saving” product doesn’t always work.?

CBD, a cannabinoid used for seizures that is derived from marijuana, doesn’t always save children’s lives.   The TRUTH is that help from CBD oils is sometimes temporary.   There’s definitely a “dark side” to this “miracle” cure.

Informing parents that children can die after using the non-pharmaceutical CBD is not suggesting that the CBD kills; it is merely suggesting that to call it “life-saving” is misleading.  Parents who have watched their children suffer much and are desperate for a cure should not be promised more than can be given.  What sounds too good to be true can be too good to be true.

A family in Arizona who was part of a lawsuit to get the extracts for their son saw a dramatic difference in the boy, an improvement in all levels of functioning.  Nonetheless, the poor boy died. The family still advocates for marijuana extracts.  They saw their son have a better life for a period of time before his death.

A girl who had been the poster child for medical marijuana recently died.  She no longer needed a wheelchair after moving from Connecticut to Maine for CBD.  (GW Pharmaceuticals Epidiolex is for Dravet Syndrome, which Cyndimae had, and for Lennox-Gestaut Syndrome).  It is estimated that 85% of patients with Dravet Syndrome survive to adulthood, although life expectancy is not well understood.

One child who moved to Colorado for the CBD medication got help, but still died.  The mother returned home alone.   The medical marijuana industry doesn’t tell you that sometimes these “miracle cures” don’t work.

Why are People, Legislators Shielded from the Whole Truth?

In March, 2016,  GW Pharmaceuticals announced results from the third phase of its trials of Epidiolex, a pharmacy grade cannabidiol derived from marijuana.   If approved by the FDA, it will be the first marijuana-derived medicine for seizures to get approval.  Trials are being conducted by the Epilepsy Center of New York University.

Recently parents came out in droves to lobby for medical marijuana in Pennsylvania, spending the night at the state legislature.  Had these parents been told that children with seizures could have participated in the trials conducted at New York University?  At the time, GW was looking to recruit 150 more patients for the second part of the third phase of trials on Dravet Syndrome.

Medical marijuana campaigns don’t always supply the whole truth, especially when there’s much drama surrounding the presentation.  When Dr. Sanjay Gupta went on television with his special segments about marijuana, he publicly advocated for “medical” marijuana using the example of Charlotte’s Web, an artisanal CBD product from Colorado.  The televised documentaries were called Weed 1, Weed 2 and Weed 3.

At the end of Weed 3, it was mentioned that Vivian, the little girl whose family moved to Colorado for an extract of marijuana not available in New Jersey, was no longer being longer being helped as much as she had been previously.   Were people listening?

Why Support Artisanal CBD?

National Families in Action (NFIA) published the American Epilepsy Society’s statements against artisanal CBD.   NFIA has written about the advantages of having pharmacy-grade, FDA-approved medicine over artisanal products, which haven’t been tested for mold or pesticides and may not have the same exactitude in dosage.

Like the “Right to Know” campaign on GMOs, shouldn’t there be a Right to Know about CBD oil advocacy, or a “Right to Know about “medical” marijuana?

Parents  who are considering alternative treatments for devastating diseases or conditions have a right to know that some of the  experimental medicines that are aggressively promoted do not always save a child’s life.  These preparations should never be called “life-saving,” because no one can prove that phrase to be true.

“Medical” marijuana has succeeded in shielding itself from lawsuits in ways that pharmaceutical companies would never be able to do.

We will continue with articles on how the medical marijuana lobbyists mislead people and manipulate legislators.

Is it a Mental Breakdown – Will I Ever Come Back?

by Kevin   I’ve been a marijuana addict for about 12 years and I’m 28 years old. It seems like my drug use has changed my brain chemistry inducing stress, delusions, anger, foggy thoughts, terrible memory, paranoia  and social angst. I have no interest in things I used to enjoy. It feels like it’s getting worse and it’s making my drug use worse as well. I find myself struggling to think clearly, even after a few days without it.

When I was around 20, I had a grand-mal seizure and was told I developed epilepsy. The neurologist was told of my frequent marijuana use. I was told it has to do to with Continue reading Is it a Mental Breakdown – Will I Ever Come Back?

Epilepsy and Pot — One Epileptic’s Perspective

Epilepsy is a different disease for many people. Some people are born with it, some develop it from a head or brain injury. There are dozens of different types of seizures and it’s not just one kind of disease with typical symptoms for each sufferer, and the treatment options differ from person to person. What controls your seizures can be so different from another person, just like your seizures might be different than another persons. It’s not an atypical experience for every person.

I have occipital lobe seizures, which means my seizures originate from my occipital lobe, Continue reading Epilepsy and Pot — One Epileptic’s Perspective